Sunday, 21 April 2019
featured Inclusion Poverty

Erica Lewis: Don’t ignore the voices of housebound people

KJIPUKTUK (Halifax) – Recently Erica Lewis considered applying for membership in the National Advisory Council on Poverty. This is a group of people with lived experience of poverty, who are to provide input on the federal government’s poverty reduction strategy.

When Erica found out it wasn’t for her because of the nature and severity of her health issues she exchanged a series of emails with the federal department of Families, Children and Social Development.

“If you really want a diverse group of people giving input, you should accommodate those who, because of illness, rarely leave their homes,” she writes.

Erica to the Department of Families, Children and Social Development

“Having reviewed the application process for the poverty reduction group, I am very angry and distraught to realize that I am excluded from participating because I am in such an extremely fragile state of health. Not only can I not travel, as is required, I would not even be able to attend public meetings. It is tragic that I cannot participate because I have been living in abject poverty for 30 years and that poverty is the reason why I am too sick to be an anti-poverty advocate. The government destroyed my health with its brutal and cruel neglect and now the government will keep me silent until my inevitably premature death.

I have many insights into the roots of poverty in Canada but you will never know how valuable my contribution could be, which I could do through letter writing. How can you ask for participation from people with disabilities if you expect us to travel? How can you not know what an ordeal it can be for a wheelchair user to fly or be on a train, to stay at a hotel that may not accommodate their specific mobility issue, or to sleep in a different bed? There are people without assistive devices living in poverty because of serious medical problems such as pain and fatigue who would be too sick to travel as well.

If you really want a diverse group of people giving input, you should accommodate those who, because of illness, rarely leave their homes. It is ironic that the people who are most affected by not having enough food to eat are least able to participate. You are already starting this anti-poverty initiative from a place of ignorance by shutting out the very people  who could most enlighten you. If any people with disabilities are able to participate, there will be so few of them that, as usual, the plight of people who are too sick to work will get little attention. All the focus will be on “child poverty” even though the most ignored group of citizens living in poverty are single, childless adults with disabilities.”

The Department responds to Erica

Their reply (I edited out a few unimportant sentences):

We appreciate the circumstances that prompted you to write and wish to assure you that the members of the National Advisory Council on Poverty will seek input from diverse groups, including persons with disabilities. The requirement for the Advisory Council to travel will allow members to meet and consult with stakeholders and individuals in their communities. We understand and value the importance of hearing from citizens from all backgrounds and experiences and want to encourage you to continue sharing your perspective. Individuals are always welcome to share their concerns through correspondence.

The Government of Canada is committed to ensuring that all advisory bodies are representative of Canada’s diversity. In the case of the National Advisory Council on Poverty, individuals with disabilities have applied to be members. We encourage you to follow the work of the National Advisory Council on Poverty when membership is announced in Spring 2019.

Yours sincerely, The Poverty Reduction Team”

Erica’s response

Thank you for your reply. Obviously, the people who have applied are able to travel. People with disabilities are all different. For example, some wheelchair users are Olympic athletes and some need daily assistance. You are not addressing the fact that you are excluding people with severe disabilities and medical problems from participating.

I am unsure what you mean by stating that individuals are welcome to share their concerns through correspondence. I would appreciate clarification.”

They did not get back to me to clarify if they meant I could participate via email or just continue to complain about not being able to participate via email.

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