Tuesday, 22 January 2019

Alex Kronstein on supports for children with autism in the education system: “When it comes to inclusive education, it is a well-known fact that EPAs and other school support staff do not have anything close to adequate training to provide support for autistic kids. There are training modules developed by actually autistic people that could give EPAs and support workers a whole new perspective.”

” I am the mother of a nine-year old boy living with autism in a province that has been defined as one of Canada’s autism wastelands, given its lack of services and funding,” writes Nancy Spina in an open letter to Minister Kelly Regan. “Outdated and inflexible criteria have an impact on children with disabilities and on the women who care for them who lose the opportunity of providing for their families, and having fulfilling careers.”

Many parents of autistic children are told about the EIBI program, and that it’s extremely important that their children receive it so they can have a good future. And they almost always accept this advice without question. But there are other options that are not based in Applied Behavioral Analysis (ABA), and that are non-pathologizing, e.g. that do not assume that there is something fundamentally wrong with the child. Alex Kronstein takes a look at one such option.

Kate, a fearless mother who we have written about before, fights Community Services and gets the glasses (with warranty) her autistic son requires. It was hard and scary, and it looks like questions the NS Advocate was asking made a bit of a difference. This story has a happy ending, but you can’t help but wonder how many people would just have given up much earlier.

Alex Kronstein on the unspoken assumption that caregivers, parents, etc. always have the best of intentions for those they are responsible for, no questions asked. Also how this manifests, and what to do about it. A great article with lots to think about. We’re so pleased to have Alex write for us and offer us his unique perspectives on these matters.